Reminiscence with people with Dementia

Treena Parsons, Research Fellow

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Thinking back over past times, remembering people, places and events. Reminiscing. It is something almost everyone does, and yet it is something that can be used as a very powerful tool to connect or reconnect with a person with dementia, by recalling good memories of times gone by.

Whilst undertaking my PhD at Trinity College Dublin, which explored the experience of taking part in reminiscence work from the point of view of people with dementia and facilitators in Ireland, I was fortunate enough to observe and hear about many types of reminiscence work. The data collected from interviews with people with dementia, care workers and family members and from observations showed the benefits and challenges associated with delivering reminiscence work in real-world environments.

In this blog I will be discussing some of the ways in which reminiscence can be used with people with dementia in everyday life, both at home and in care settings. I will be discussing simple reminiscence work as opposed to reminiscence therapy, which is more specialised and may have an element of life review or self- evaluation involved. Simple reminiscence is usually aimed at sharing common memories and encouraging social, educational or recreational objectives. It usually uses open-ended prompts or multi-sensory triggers to stimulate reminiscence on topics likely to be of interest to participants and unlikely to trigger painful memories.

Why Undertake Reminiscence Work?

Reminiscence is associated with many benefits such as increased self-esteem and self-identity, enhanced communication and improved mood and wellbeing but It is also important to remember that as well as being a therapeutic activity, it is an activity which can simply be enjoyed by both the person with dementia and the caregiver (formal or family member/friend) and the value of that should never be underestimated.

How to Undertake Reminiscence Work

Reminiscence is often associated with looking at old photographs but there are many other ways to reminisce.

If you have specific time to put aside, a really pleasurable reminiscence activity can be compiling a life story book together. Life story books can be bought or you can easily compile one yourself, using simple materials such as a loose leaf ring folder, which has the added advantage that you can keep adding to it and can take out parts which a person with dementia decides they no longer want.  The book can become a record of a person’s life.  Some people like to record a life story in a chronological fashion, starting at birth.  Others prefer to concentrate on specific topics such as holidays, Christmas or other celebrations, jobs, favourite foods or films.  The list is endless.  Photographs are frequently included but other items can be used too, such as old school reports, wage slips, pieces of material which have significance (for example material from a favourite dress or curtains).  Take your cue from the person with dementia, it is their book and it is up to them to decide what should or shouldn’t be included.  Compiling a life story book can be an enjoyable activity for both the person with dementia and those who help them put the book together, and can often be a way for different generations to come together on a shared project.  Grandchildren and great grandchildren can help for example and can themselves benefit from learning about a different generation and family history.  But you can also try different ways to compile life story information, for example collages or blogs.

Reminiscence does not have to be done as a specific activity, it does not have to take up much time and can be incorporated into simple, activities of daily life.   Shared activities such as baking, polishing, gardening or folding ironing can all be enjoyable ways of connecting and these activities can be used to prompt reminiscence.  One example I was told of during my PhD studies was a caregiver singing an old familiar song to someone whilst helping them bathe.  A simple way of turning what was sometimes a stressful event into a more pleasant one.

Music is a very useful prompt for reminiscence and favourite songs and hymns are great ways of prompting reminiscence. The lyrics of songs and hymns may be remembered long after other things have been forgotten.  Humour is also a useful prompt with the retelling of old jokes and anecdotes and watching old comedy films, especially those with visual humour, often being enjoyed.

Recently new ways of reminiscing using technology have emerged and the Social Care Institute of Excellence (SCIE) have issued a guide for social care providers on using information and communications technology (ICT) with people with dementia in reminiscence work. In the guide ICT is acknowledged as an important resource for reminiscence work as it can give virtual access to a wide variety of prompts instantly, can easily be individualised and is flexible.

Reminiscence can involve all the senses, so think about things to smell, to see, to taste, things to touch and listen to.

Who should take part in reminiscence?

Most people with dementia enjoy taking part in reminiscence activities, but it is important to remember that not every person with dementia is suited to taking part in reminiscence. Some people are not interested in the past and some have experienced traumatic or distressing events which they may not wish to revisit.  It is important to always take your cue from the person with dementia and if necessary take advice from professionals. Similarly for caregivers, not everyone is suited.

Further information:

There is a growing body of work on reminiscence and the following may be of interest:

Robert Butler, (who founded the US Alzheimer’s Disease Association) was the first person to bring reminiscence for older people to the attention of health professionals and researchers worldwide and his work is still relevant today.

I particularly recommend the work of Faith Gibson, which is accessible and practical and uses a developmental life span perspective. Her book “Reminiscence and Life Story Work” is well worth reading.

The Reminiscence Network Northern Ireland is a good source of information and support and runs training courses.

And of course I would be happy to share my thesis with anyone interested in reading it!

 

How do we enhance undergraduate healthcare education in dementia?

Wendy Grosvenor, Teaching Fellow in Integrated Care (Older Adult)

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Time for Dementia aims to try personalise education by focusing on the experiences of people with dementia, rather than their diagnosis. This innovative project transfers the focus of education of health professionals by putting relationships with families and the heart of understanding what’s really important in care for people living with dementia.

Funded by Health Education England Kent, Surrey and Sussex the 4 year collaborative project involves Brighton and Sussex Medical School (Medical students), University of Surrey (Nursing and Paramedic students), Sussex Partnership and Surrey & Boarders NHS Foundation Trusts and the Alzheimer’s Society. Time for Dementia has been running since November 2014, currently there are 4 cohorts of students (n=741) taking part in the programme, and 370 families involved. This innovative project has won a National Dementia Care Award (2016) and Laing Buisson (2016) award for best dementia training initiative.

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Student feedback demonstrates increased awareness of the family perspective of dementia, increased knowledge of dementia and positive impact on practice – skill development.

“Being able to gain understanding of what it is like living with dementia and to understand the carer/families role and their feeling/experiences”

Adult Nursing Student

 Feedback from people with dementia and their carers included feeling valued, shared learning, making a difference and feeling listened to.

 “The student’s enlighten me…they listen to me. It bought me to life.”

                                                                                                     Participant

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Reflecting on Dementia

Melaine Coward
Head of School, Health Sciences

From the 1st to the 8th March 2017 Dementia UK will be holding their annual Time for a Cuppa event. They encourage people to get together, bake and raise funds. Dementia UK will use all money raised to fund their Admiral Nurses, who are trained to support people diagnosed with dementia and their families. They also provide Admiral Nurses to look after a support line that anyone can call to get advice from. A valuable source of information and advice for all carers and people living with dementia. We will be holding our very own Time for a cuppa morning on the 6th March at the school and we’re encouraging people to come along, bring their own baked goods to sell and to buy some others.

Whilst organising this event, we came to reflect upon what we, as a school, are able to do to contribute to the research into dementia. The Alzheimer’s society tells us that there are 850,000 people living in the UK that have been diagnosed with Dementia and this number is set to rise. There are different types of dementia with 62% of those diagnosed are diagnosed as having Alzheimers and 17% of them being diagnosed with Vascular dementia.

More research is needed, not only to look at possible cures for dementia but also to look for ways in which we can support those diagnosed with dementia and particularly support those caring with dementia.

This week, we’ll be releasing a series of blogs that will discuss the research that we’re doing within the school. From looking at the ways technology is being used to support those with dementia to research examining strategies to help care for dementia. We’ll also look at a scheme in which we pair up our student nurses with families caring for a person with dementia. This Time for Dementia project is collaborative research that aims to improve the care and support we give to people diagnosed with dementia and their carers.

We also encourage all of you to sign up as a Dementia Friend. It’s free, takes minutes to do and it’s designed to give us all more of an understanding of what it’s really like to live with dementia.

So, join us in baking and selling cakes and then sit back and reflect on our research by reading our blog posts.

Keep an eye on our twitter @healthscisurrey and instagram  schoolofhealthsciences feeds for more information.

 

 

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